Monday, June 2, 2008

More info

Today I spent the morning and part of the afternoon over Emma's house, keeping my eye on Marissa. She has to be monitored closely. Pulse taken and written down each hour. Meals, activities written down, but no physical exertion at all. No running, skipping, hopping, jumping, nothing to cause her any stress at all. She has to lay down 30 minutes every 1 1/2 hours so her ankles do not swell, which they were doing yesterday. She's experiencing numbness in her fingers, slight pains in chest when she is up and moving around, and the biggest issue is she cannot fall asleep. This child was up over 24 hours with no sleep. Finally Emma gave her a dose of her Benedryl for her allergies and it caused Marissa to finally fall asleep. Marissa has had an allergy problem since birth. They were at the hospital 12 hours, 5pm yesterday til 5am this morning. Marissa is all wired up to her monitor and she hates it. She says the glue stickers are itchy. The cardiologists office called Emma at 8:30 this morning. She has to go see him wednesday morning. They got her in quick. Marissa will be given an dye injection and have a cat scan and an ultra sound. She is going to have a complete blood work up also. The cardiologists said this type of thing just doesn't happen. It is something that happens before birth. And is rarely detected unless tests are done. She had 3 ECG's last night and all 3 showed abnormality. A specialists checked the results and his conclusion was Wolff Parkinson's White Disorder. He says wednesday after all tests are done and he has the results, he will talk to Emma and Dan about options, surgery being one of them. That means Marissa will be spending a few days in the hospital. The procedure is to burn off the vessels that should not be there, by going up through her upper leg area near her pelvic area.

I want to thank each of you so very much for all your prayers you've sent up for me and my family lately. With what's been happening the past year, we certainly can use them. Things gotta get better soon, right? I sure hope they do. Jim is real upset over this new issue with Marissa. He just left to go over to see her and let her know she is loved by her Poppop.

I won't know anything more until after she goes to see the doctor on wednesday. But as soon as I find out anything I will let you know right away.

Later tonight I have a ton of pictures and video's to post. Jim and I kept our baby grand daughter over night saturday night and Rebecca went to her sister's. Adrianna was sooooooo good for us. She slept all night from 10pm until 6am. I will be back reading your journals starting tonight. I bet I got alot to catch up on in your lives.

Tomorrow in class I am spending the whole day. I'm going to have the kids make get well cards for Marissa. She will like that alot. Well, time to cook dinner. I'll see ya all later tonight. And again Thank you so much for caring.

Love you all.........................CINDY


  1. Still sending up prayers for Marissa here. Hugs, Helen

  2. Cindy ... you folks are having a 'trying' year and I think sometimes no matter how hard the hits are or how fast they come, in the end, we become stronger for it all.  Four and one-half years ago I experienced such a year of horrid events, tragedies and ... oh, I thought I wouldn't get through.  I did.  And you all will too.  

    Hugs, hugs, good thoughts, well wishes and many, many prayers for you and your family.  

    Thank you for the update.  

  3. Thank you for updating us. Poor little sweetie, That is hard thing to do, keeping a little one from playing and running around. I will continue to keep Marissa in my prayers.

    What a special treat!, Having Adrianna for the night. Glad you enjoyed your time.


  4. So many bad things happening in your life Cindy, it has just GOT to get better.  But please take care of yourself.  You cannot afford to make yourself ill. You and yours will be in my thoughts and prayers.

  5. Awww... I'm glad Marissa is finally getting a little rest. Hope they figure out what to do and just do it and make her all better.
    John's cousins little girl had to have something like that done. She was never allowed to do anything because of her heart. She had to have surgery and is now normal. I don't remember if she had the same condition or not.
    Keep us updated. Can't wait to see new pictures of the kiddos.
    Take care and Hugs, Chrissie

  6. you know you're always welcome and as always you guys are always in my thoughts and prayers....i'm glad that riss is getting some rest she needs it
    i will fix her up a getwellcard tonight and mail it to you to get to her

  7. Awwwww Cindy, glad Marissa is getting some rest, praying for her that she will be ok, Love You Lisa XO

  8. Keeping Marissa in our prayers.


  9. I've had you on my mind all day and nearly in tears when I think of Marissa.  Please keep us informed and take care of yourself as much as you can.



  10. I will be waiting to hear what is to happen next Cindy. Prayers circling you ALL.
    Much much Love  sybil xx

  11. I'm sure this is so stressful for all of you.  Poor Emma has been through the ringer and back again, as have you.  Surely life has got to get better.  
    Marissa will continue to be in my prayers, Cindy.. I know God is watching over her, and whatever needs to be done, will only prove to make her better!

    Hugs and love

  12. Hi and HUGS!

    I'm Michelle - a friend of Lisa from lisa's place of thoughs and ramblings.

    I'm keeping Marissa and your whole family in my thoughts and prayers.



  13. Dear Cindy. Things HAVE to get better for you. Poor Marissa such a darling child. We all  from over the Pond will be praying for you and all of your dear family. Kathie.

  14. Keeping you all in my thoughts and prayers.

  15. Keeping everyone in my thoughts!!

  16. I hope Marissa is feeling better. I can not imagine how scary this is for you all.

  17. Ohhh that poor girl, she is in my thoughts each hour and each day.  I know they have been through a lot.  Just keep staying strong!

  18. Wow you guys really are getting hit with one thing after another. I am keeping you all in my prayers. I know this is just awful for the whole family. Keep praying....
    Love ya, Pam xoxox

  19. Have a wonderful Birthday! I hope this coming year will bring you much happiness.